We had each other, and then we had Lily, and now we have everything. Lilliana has tuberous sclerosis. This is our journey and our fight of this disease. And more importantly, our determination to live well and fully in spite of it!
Friday, July 30, 2010
New Set of Wheels
This Kid Walk is on borrow, but we've ordered one that will be Lily's. Of course, it will be trimmed in raspberry fizz pink. :) They cost $4000, and I'm not sure how much insurance will cover (I've heard not much). We're waiting on the paperwork, but if we can't afford it...well, I guess we'll have a bake sale--because she needs it!!!
Sunday, July 25, 2010
Friday, July 16, 2010
Friday, July 9, 2010
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