About Us

We are parents to a sweet little girl, Lily, with Tuberous Sclerosis Complex.  This disease causes non-cancerous tumors to grow on all of your organs. Lily has an innumerable amount of brain tumors, at least 13+. She also has uncontrollable seizures, developmental delay, sensory integration issues, and sometimes falls into the autism spectrum.  Lily is about to turn three and she is unable to walk, talk, or feed herself. We have spent much of her life in hospital rooms, emergency rooms, doctor's offices, and blood labs. We spend much of our days doing therapy for Lily; she has a special education teacher, a speech therapist, occupational/physical therapist, and preschool teacher that come to our home.  We spend much of our day doing therapy, logging medical information, and feeding her.  Our medical expenses are shocking and the exhaustion and fear we face at times can be shattering.

That said, we will not sit in sorrow and crumble.  Our purpose in life is to find laughter and happiness in even the darkest of places. Lily has taught us many things, the most important being--always live in the present moment because if you don't, the disease wins--it takes over your whole life.  We often say around here, "Don't live in the seizure." If we're focused on the last long seizure, we miss all the seizure-free moments in-between.  We want to fill our lives with adventure, baking, crafts, books, music, film, and suck the marrow out of life.




INDIVIDUAL INFORMATION


William Brewster (aka Silly Dad)
Masters Degree in English Literature
Loves government t-shirts (FBI, Search & Rescue, Scotland Yard etc.)
Plays guitar and sings
Writes poetry and short novels
Paces the floor when he's nervous
Can talk anybody into anything
Was a writer for Infinity Press Magazine
Loving, loyal, and down right silly.  


Heather Brewster (mom, nurse, therapist, wife)
Navy veteran--Plane Captain A-6 Intruder
Bachelor Degree in Psychology
Loves Archaeology and History
Is known to turn off the lights and have her own dance party
Bakes way too many sweets
Lived in Spain for 3 years--speaks Spanish
Won't wear frumpy clothes--not even a sweatshirt--ever.
Currently writing a book entitled "The Adventures of Isabella Watson"


Lilliana Brewster (Lily, Lollie, Lily Bell, Lily Bug, Lillers)
Prefers to cuddle and lay her head on you 
Laughs all the way through Despicable Me
Has a best friend named Brooklyn
Her laugh is super contagious--you've been warned
Loves music! ABCs, the White Stripes, and Jonsi
Sparkles when she smiles
Thinks sneezing is hysterical
Has a Giraffe named Mr. Tiki that goes everywhere with her