We had each other, and then we had Lily, and now we have everything. Lilliana has tuberous sclerosis. This is our journey and our fight of this disease. And more importantly, our determination to live well and fully in spite of it!
January 30th...my raison d'etre--Tout de suite Lily. She was so shockingly beautiful to me. I thought she would be all wrinkly and funny looking...but she was simply perfect. We all loved her right away!!
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