We had each other, and then we had Lily, and now we have everything. Lilliana has tuberous sclerosis. This is our journey and our fight of this disease. And more importantly, our determination to live well and fully in spite of it!
Tuesday, November 23, 2010
Update
Lily has been doing well as of late. She is on four seizure medications, and we are still seeing 1 to 2 seizures a day, but that's better than before. Every now and then we will have a day that is without seizures, and they never go by without great appreciation. She is still not crawling or walking, but she has just lately started to get motivated to get a toy that is out of her reach and that is the first step! We will keep working toward seizure freedom!!!
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