In 2011 Lily was in the hospital in July for her annual EEG and brain MRI. Then she had ear tubes (her second set). Followed by urinary reimplantation surgery and two weeks later, a hernia surgery. Then she was admitted to the hospital for vomiting and long seizures. This does not include the multiple brain MRIs, the Cat Scan, the kidney ultrasounds (x2), a chest x-ray, so many blood tests I can't count, the regular pediatrician appointments, the 3 ENT appointments, the ophthalmologist, the dentist, the multiple urology doctor visits, the many neurology doctor visits, occupational / physical therapy, speech therapy, 3 emergency room visits, and 2 ambulance calls. And through all of this, our sweet Lily girl still has a genuine smile, but thinks that anyone that approaches her is a doctor or nurse. It takes her awhile to warm up and trust that you're not going to poke and prod her...and if you just happen to keep a stethoscope around your neck--forget it!!!
We had each other, and then we had Lily, and now we have everything. Lilliana has tuberous sclerosis. This is our journey and our fight of this disease. And more importantly, our determination to live well and fully in spite of it!
Sunday, January 22, 2012
Hospital Stays 2011
In 2011 Lily was in the hospital in July for her annual EEG and brain MRI. Then she had ear tubes (her second set). Followed by urinary reimplantation surgery and two weeks later, a hernia surgery. Then she was admitted to the hospital for vomiting and long seizures. This does not include the multiple brain MRIs, the Cat Scan, the kidney ultrasounds (x2), a chest x-ray, so many blood tests I can't count, the regular pediatrician appointments, the 3 ENT appointments, the ophthalmologist, the dentist, the multiple urology doctor visits, the many neurology doctor visits, occupational / physical therapy, speech therapy, 3 emergency room visits, and 2 ambulance calls. And through all of this, our sweet Lily girl still has a genuine smile, but thinks that anyone that approaches her is a doctor or nurse. It takes her awhile to warm up and trust that you're not going to poke and prod her...and if you just happen to keep a stethoscope around your neck--forget it!!!
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