We had each other, and then we had Lily, and now we have everything. Lilliana has tuberous sclerosis. This is our journey and our fight of this disease. And more importantly, our determination to live well and fully in spite of it!
Friday, January 13, 2012
lily-grace.com
On Christmas Day, Alicia and Aaron Legg, our sweetest friends, surprised us with a gift that exceeded any present anyone could have every given us. Unbeknownst to us, they started a website: lily-grace.com. Alicia is one of my very best friends, and she knows that while we are dealing with the fear, heartbreak, and exhaustion from this disease, we also are neck deep in medical bills that as soon as we get some paid, the new year starts and we owe thousands more. Most of the time, we just try to make small payments, but it gets out of hand easily. Since Lily isn't walking, we also needed a Kidwalk to help her stand and learn to move around. So, for Christmas she asked for donations to help us. When she presented me with the check to pay for the Kidwalk, I couldn't help but cry. I was amazed that others would give their time and money to help us. I'm flattered, humbled, and so very happy that Lily's Kidwalk is paid for!!! And that's not all....others have donated too! One person gave $300! That will go toward Lily's medical bills which are already piling up this year....not to count the $7000 plus that we owe from last year. I cannot tell you the gratitude we feel that anonymous people are helping our sweet little girl. This has amazed me, and I will never forget the selflessness of those who help us along the way. You are her guardian angels, and I am eternally grateful for your help!
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