Starting the Afinitor

We started the Afinitor on January 21, 2012. I was so nervous to give it to her; it felt like taking such a big step into the unknown that literally my hand was shaking while giving it to her.  Making decisions as to whether to have brain surgery or a chemo drug is absolutely overwhelming at times.  I hope that we have made the right decision--only time will tell.  However, over the past 2 days, Lily has done remarkably well on the drug, and we have not seen any side effects.  She has been a little bit fussy, but I think this is due to her sleep getting out of sorts during the past ice storm where we lost power for a couple of days.  She is eating well, doesn't seem excessively tired and is otherwise the same.  She had a brain cat scan in December and she will need to have a brain MRI every 3 months to watch the tumor and ensure that it is shrinking.  We have been on lock-down in the house trying to keep her from getting sick so that we could start the drug.  We both have cabin fever and are ready to get out a bit and explore the world.  On another note, I would also like to thank the people in our lives, family and friends, that have helped us.  We have a new chair in Lily's room that has been a life saver on many occasions; we have had help with really old medical bills; we have a new piece of recreational equipment for Lily that will help her (and us) tremendously...and to those of you that listen and care--it means so much!!  To you, and you know who you are,....I thank you from the bottom of my heart.  You cannot take away our struggle, but you do make it easier to push against the wind.