We had each other, and then we had Lily, and now we have everything. Lilliana has tuberous sclerosis. This is our journey and our fight of this disease. And more importantly, our determination to live well and fully in spite of it!
Sunday, January 22, 2012
Walking On Sunshine
Lily's Kidwalk is helping her to strengthen and prepare her body to walk, and she is really doing well with it. Her occupational therapist has been guiding us with exercises that will further her gross motor advancements. We make sure that the Kidwalk is super fun so that she's getting strong without making the work an unhappy experience. She is about to turn 3 years old, and just this weekend crawled about 2 feet!!! This is absolutely amazing to us and a lot of this has to do with the strength that she's gaining with the Kidwalk and the changes in her medications!! Now when we use the Kidwalk, we are not constantly reminded of the large outstanding bill that accompanied it!!! Thank you to Alicia and Aaron for getting a generous donation from a church (I would like to mention who they are; however, I don't yet have their permission). Thank you all for believing in our Lily!!!
Subscribe to:
Post Comments (Atom)


No comments:
Post a Comment